Well now, so much has happened since the last time I posted in here. Here we go, this may be the end of my posting, not sure yet.
On March 13th, my health insurance was cancelled. Let me start a week before hand.
My Neurologist gave me more time off because I wasn't healing like I should. There are more complications. He suggested radiation treatments. The tumor grew just a bit. He wanted to stop it before it grew any more. He said I have two options, Go back in for surgery or radiation. We choose radiation.
I get a letter in the mail about my insurance. It said it would be cancelled on March 13th. So, I called them to find out why. They told me that all my sick pay and extension were all used up. I was no longer eligible for insurance; the benefits were exhausted. SERIOUS!
Now the radiation treatments are on hold. All my medicines I am on will not be cheap. My wife and I had to discussed what medicines I would have to stop. We were both freaking out. Then my wife remembered the Helen Nickless clinic. It is free medical here in our area, for people without insurance. I get free medications, thank goodness. That is solved. The people at the clinic told us to sign up for Medicaid and Medicare. So I did. I was denied for both because my wife and I make to much money. If we divorced, after 40 years, they would cover me.
My wife is retired and on SSD. She also gets a pension check. She has Medicare with Humana. She had to retired out early because of her medical issues.
In April, I was approved for SSD but, I couldn't get Medicare for two years. It's hard to find health insurance with pre-existing conditions. If you happen to find one, you might as well give them an arm and a leg.
My wife feels like I am getting worse instead of better. So, she went to the financial aid at the hospital here and signed me up for aid. It's been two weeks now and we haven't heard anything yet. That only makes us feel I was denied for any help.
So we are trying to save. But things just keep popping up, medical for both of us. My wife right now with her insurance is in a donut-hole. She has to pay almost full price for certain medication. Of course, we couldn't afford them, so we had to choose between them. Diabetic med $896.00, and that was the cheapest for 1 medication. Every time I have a phone conference with my neurologist it cost over 2k a pop.
So, now with all of this going on my wife's anxiety went way up. Her doctor put her on medication to help with it. She is a very strong person but even a strong person needs a little help.
This is some of the things she has to do for me. She has to help me in the shower, then dry me off when done. She has to take care of my eye, hears and nostrils. Clean and then put drops in my eye, patch it 3 times a day. She has to cook all my meals. Make my drinks. She fills my medication containers plus my vitamins. She has to do all the laundry, clean my glasses, put external medications on me. Help me get in and out of the car. She has to vacuum several times a day. So much more. Before I had this tumor, I would clean the bathroom because my wife had a hard time with the cleaners. She has C.O.P.D and can't inhale the fumes without coughing herself to death. So some of the cleaning goes a bit longer than it should. She has to make all of the decision major and minor. My speech is still bad. I get frustrated when she can't understand what I am saying. She gets frustrated as well. My mind feels like it is in time warp. I will start talking about something that we discussed 3 days ago. She gets confused. My balance is terrible. I fall because it feels like the room is spinning. I am faithful on doing my exercise's but sometimes I feel I am wasting my time because we don't see any improvements.
Well, that's it for now. I am sure I forgot something but that is how it goes with me.
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